209. This—

As the brain

Deteriorates, 

A person’s 

Vocal projection 

Diminishes

The voice

Disappears. 

This

Is to be

Expected.

This

Is what we

Were told. 

Believed

And 

Anticipated.

This

Is what happened;

No one 

Could hear you. 

But they didn’t

Tell us

This—

Nothing 

Is given;

Anything

Can change. 

Rearrange. 

Today, 

Two years later,

You voice

A new view

And everyone 

Hears you. 

The Poetry of Dementia is an ongoing project to share my family’s journey with my mother’s illness as a year of moments. We do not know whether my mother will live a full year—or perhaps she’ll live longer. Her dementia has been a bittersweet and beautiful journey that has already taken us places we never imagined. Loving and caring for her at home has fundamentally changed each of us, and daily reminds us to live in the present with love, trust and patience. Click here to read from the beginning.