202. Your Kingdom is a Royal Mess

Your husband 

Brings the ipad

Up close

And personal

To tell me

He has a serious 


On his hands. 

When you woke 

From your two hour nap

He escorted you 

To the bathroom

—You said 

You needed

To go—

But then refused

To allow him

To lower your pants.

Told him,

“You’re not going to see

My kingdom.”

It’s another two hours later,

He tells me,

And still

You won’t go—

Not with him. 

We laugh,

But know 

The truth—

It isn’t funny.

Dirty diapers

And UTIs.

With your mind 

In disarray, 

Your kingdom

Is a mess.  

The Poetry of Dementia is an ongoing project to share my family’s journey with my mother’s illness as a year of moments. We do not know whether my mother will live a full year—or perhaps she’ll live longer. Her dementia has been a bittersweet and beautiful journey that has already taken us places we never imagined. Loving and caring for her at home has fundamentally changed each of us, and daily reminds us to live in the present with love, trust and patience. Click here to read from the beginning.