155. When the Color has Left Your Cheeks

Your friend

Nan

Made me a quilt;

Had asked me

Earlier

What my colors

Were. 

Boring 

According to you.

Black, 

White

And shades of grey. 

You tried

To inspire me

To wear color. 

The quilt has

Red

Borders. 

Black and white

—with red;

The color carpet

I chose 

At age 

Four

For my room. 

I had my own

Room;

Two of them.

I know now

What that means

And I will

Remember

How you 

Asked me

What I 

Wanted—

And listened.  

It will be

My comfort

Quilt

When you are

Gone. 

A choreograph 

Of patterns

And shapes—

Patches 

Of memory

Sewn into

A loving

Embrace;

The feeling 

Of you. 

The Poetry of Dementia is an ongoing project to share my family’s journey with my mother’s illness as a year of moments. We do not know whether my mother will live a full year—or perhaps she’ll live longer. Her dementia has been a bittersweet and beautiful journey that has already taken us places we never imagined. Loving and caring for her at home has fundamentally changed each of us, and daily reminds us to live in the present with love, trust and patience. Click here to read from the beginning.